Links
These are some of the resources that helped me most, during a time when I was hungry for information. -John
- Blood and Marrow Transplant Information Network (BMT Infonet)
2310 Skokie Valley Rd., Suite 104
Highland Park, IL 60035
888-597-7674 or 847-433-3313
Publishes patient guides and a newsletter; links not only transplant patients with survivors, but all family members involved in the process as well; maintains a directory of transplant centers and helps with insurance problems.
- National Bone Marrow Transplant Link (Nbmtlink)
20411 W. Twelve Mile Rd., Suite 108
Southfield, MI 48076
800-546-5268 or 248-358-1886
This organization has educational information, including booklets and a video, about bone marrow and stem cell transplants. Provides peer support to BMT patients and health professionals.
- American Cancer Society (ACS)
1599 Clifton Rd. NE
Atlanta, GA 30329
800-227-2345
The ACS provides a variety of research, printed information, and educational information for cancer patients and their families.
- Cancer Care, Inc.
275 Seventh Ave.
New York, NY 10001
800-813-4673 or 212-712-8400
Cancer Care offers counseling, financial assistance, educational information, and practical help for cancer patients and their families face to face, by telephone, and online.
- Gilda's Club Worldwide
322 Eighth Avenue, Suite 1402
New York, NY 10001
888-445-3248
This very proactive cancer support organization was founded in behalf of Gilda Radner. It is an international network where men, women, and children with cancer and their families and friends join together to build social and emotional support as a supplement to medical care in a free, nonresidential, home-like setting. People with all kinds and stages of cancer are welcome in thirty locations in the U.S. and Canada. Programs provided include, but are not limited to, networking groups, wellness groups, potlucks, lectures, various activities groups (art, yoga, color penciling, singing, etc.)—all with learning, sharing and fun in mind.
- Gilda's Club Metro Detroit
3517 Rochester Road
Royal Oak, MI 48073
248-577-0800
The Detroit area affiliate of the Gilda's Worldwide organization. Follows the mission of the national organization (see above). Has numerous wellness and networking groups, provides lectures, activities, and social events. Included in the Metro Detroit affiliate is a large and established multiple myeloma networking group which meets the third Thursday of every month from 6:30-8:30 p.m. Contact Joe Perry or Chris Spencer for more details.
- Lance Armstrong Foundation (LAF)
P.O. Box 161150
Austin, TX 78716-1150
512-236-8820
Helps people with cancer focus on living: unity is strength, knowledge is power, and attitude is everything. The LAF provides practical information and tools for cancer survivors and their families. It does this through advocacy, education, public health, and research efforts.
- National Cancer Institute (NCI)
800-4-CANCER (800-422-6237)
NCI provides a complete source for cancer patients for information on cancer, including disease descriptions, clinical studies, prevention, and links to cancer centers.
- The Leukemia & Lymphoma Society
1311 Mamaroneck, Suite 310
White Plains, NY 10605
800-955-4572 or 914-949-5213
This organization covers the main blood cancers: leukemia, lymphoma, and multiple myeloma. This organization provides information, support, medical news on a regular basis, and patient financial aid.
- International Myeloma Foundation
12650 Riverside Drive, Suite 206
North Hollywood, CA 91607-3421
800-452-2873 or 818-487-7455
IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The organization provides information, research funding, seminars, and workshops for the blood disease multiple myeloma. IMF operates a Myeloma Hotline for the patient community and medical professionals.
- McCarty Cancer Foundation
27172 Woodward Ave.
Royal Oak, MI 48067
800-746-0355 or 248-336-2500
The McCarty Foundation provides support for myeloma patients and funds research grants to fight myeloma on an annual basis.
- Multiple Myeloma Research Foundation
383 Main Avenue, Fifth Floor
Norwalk, CT 06851
203-229-0464
MMRF provides educational materials and is very proactive in funding research for myeloma. This organization also sponsors patient/family seminars and teleconferences on multiple myeloma across the country. MMRF provides a bimonthly email newsletter with updates on research, clinical studies database, and current topics on multiple myeloma. MMRF also sponsors an annual blood advocacy initiative in Washington, D.C.
- Reel Recovery
160 Brookside Road
Needham, MA 02492
800-699-4490
Reel Recovery is a national nonprofit organization that conducts free fly-fishing retreats for men recovering from life-threatening cancer.
- Reeling and Healing
1400 North State Parkway, #8A
Chicago, IL 60610
866-237-5725
Reeling and Healing is a licensed charitable nonprofit comprised entirely of volunteers who provide fly-fishing retreats for women diagnosed with or surviving cancer.